Hope you enjoyed this roundup…and… Happy New Year!!! TSA Screening Cards for Ostomates and those with Health Conditions Yesterday, the Transportation Security Administration TSA approved of a solution to help passengers with medical conditions such as Ostomy discreetly inform staff of their condition to avoid any potential communication issues. These cards merely state that you have a medical condition that may affect the screening: I have the following health condition, disability, or medical device that may affect my screening: I understand that presenting this card does not exempt me from screening. This card allows you to describe your health condition, disability, or medical device to the TSA officer in a discreet manner.
Has anyone stopped taking their UC medication, IV drip or self injection? Your life as normal and you did not need it? I stopped infusions and was fine, because I believe I NEVER had UC, but instead had suffered a reaction to a particular drug prescribed by my dr for an unrelated infection. Then I went in for my annual colonoscopy where a gi dr forced a scope in the wrong direction and caused a blood clot in my leg. I ended up being poisoned, lied about, lied to, had test results withheld from me, and lost three organs because a surgeon provided the means for me to be dosed via IV with meds I had refused orally for a disease I DID NOT have, which was in the pathology results he withheld.
He had specifically withheld pathology that I would have used to rescind his surgical permission, had he been honest with me and shown it to me.
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March 9, at 2: Those were the good days, the bad ones were when the side effects lasted all day. I eventually developed allergic reactions to every laxative on the market that resulted in my being told I was out of options,, time for surgery. My worst nightmare was coming true, a colostomy bag. Being the stubborn person I can be, I started researching the internet to see what my life was about to become.
I came upon the article about the BCIR. I firmly believe God put that article in front of me because He knew I could not wrap my head around having a bag. I called the number on the website, sent my medical records, called several people, whose numbers the office sent of people who had the surgery, decided I could live with that , was approved for the surgery.
The hospital has a set program they follow. My surgery was on Wed. April 15, , on Sat, the 18t, I had my last pain meds, other than the occasional tylenol. The hospital stay is 21 days,was on tpn until you start eating, They have a set schedule they follow. When I came home I was very sore in the abdomen for about 2 weeks.
Living Bigger with Colostomy: Ostomy Gear for BackPacking
Ostomy Lifestyle Specialist and fellow ostomate Laura Cox shares her most frequently asked patient questions (and she gives you the answers, too). photo: Sherry Yates Young/ Editor’s note: in her blog series, Ostomy Lifestyle Specialist Laura Cox, Shield HeatlhCare, shares lifestyle tips and information with fellow ostomates.
Eight to 10 glasses of water, cranberry juice or other noncaffeinated beverages daily Source: United Ostomy Associations of America You can participate in sports if you have an ostomy Unless your favorite hobby is a contact sport with lots of potential for injury, you’ll be free to go back to the activities you enjoy after you heal from ostomy surgery. The main danger is injury to the opening where waste or urine leaves your body stoma , which means rough sports may be out.
If you want to continue these pursuits, ask your doctor or ostomy nurse about special products you can use and precautions you can take to protect your stoma during these activities. Check with your doctor before you begin lifting weights after your surgery. You may need to wait for your surgical incision to heal before lifting weights, to reduce your risk of complications. Once you’re fully healed, your doctor or an ostomy nurse might recommend a device to support your abdomen when lifting weights.
If you’re nervous that running, swimming or other athletic activity will loosen your ostomy bag and cause a leak, use a special belt or binder to hold your ostomy bag in place. Check with your local medical supply store or look online for specialty products for active people with ostomies. You can go back to work if you have an ostomy You’ll need time after your surgery to heal and recover, but you can eventually go back to work. You might choose to ease back into work or talk with your employer about a limited schedule until you feel more confident with your ostomy.
If your line of work involves manual labor or lots of lifting, your doctor may recommend ways to protect your stoma on the job. Consider going back to work once you’re feeling well.
Sex with an ostomy
Leave a reply It seems like every day we are constantly told that we are simply not good enough. I have been labelled everything mentioned above. Without the mental capacity to push yourself through some gruelling workouts when on a low-carbohydrate diet, with your body tight from yesterdays workout you are ultimately setting yourself up for failure and disappointment. This then progresses to the mental games that your mind likes to play.
is tracked by us since September, Over the time it has been ranked as high as in the world, while most of its traffic comes from USA, where it .
It wasn’t an amazing career milestone or hitting my Tin wedding anniversary. Advertisement – Continue Reading Below So what changed? However, when it comes to adjusting to your new body and how to cope with it in the real world, in all honestly, unless they have one, they really have no clue. My Thing, The Thing… it was always Thing. In my head, I think that calling it that meant I could talk about it and nobody would know what I was talking about. Do you know what I call it now?
Because that is exactly what it is. Only took me nearly 10 years to get there… 2. Play by the eating rules, to a degree When you first get your bag, you are given a list of about 2 billion things you cannot eat. Sweetcorn and mushrooms are my nemesis. Everybody is different, so the NHS and online lists encompass all the possible foods that can affect anybody and everybody, to be safe.
Trust your gut a little — metaphorically and literally!
My emotions have an impact on my stoma
Resources You and your partner may experience different feelings. These concerns are best addressed openly. Tell your partner that sex will not harm the stoma, and body contact will not loosen the pouching system. Some practical suggestions are: Empty your pouch before intimacy Women may consider crotchless panties, ostomy wraps, or teddies to hide and secure the pouch.
Men may consider an ostomy wrap or taping the pouch in half to prevent it from dangling.
It’s In the Bag and Under the Covers Specific to sex, dating and intimacy for ostomates, “It’s in the Bag and Under teh Covers” answers questions and frankly discusses the topic of intercourse and relationships for both ostomates and their partners.
The operation that was performed May 13 to save his life made a hole — artificial opening — in his abdominal region so waste ordinarily passing through the colon might be evacuated into a pouch. Due to damage to his intestine in a few places, the Pope has been relying on the colostomy until injured parts heal enough to allow him to have bowel movements in the regular way. The operation the doctors say will take place soon will restore conditions for normal bowel evacuation.
And they estimated it will take the pope ‘one or two months’ to recover fully from the second surgery. The pope’s ostomy makes him what the medical profession calls an ostomate. The operation that made him that is far from rare and it is life-saving. Ranks of ostomates number 1.
TRUST YOUR GUT.
There may be people telling you that you need to do more, but you need to understand that if you want to heal your body, you have to learn to listen to your body when it tells you to say no. I heard negative comments about people not working due to chronic illness. Chronic illness can be like a full-time job but without the benefits and with a lot more debt, so realize that your job is to take care of your body in this moment.
They may have physical or mental challenges you know nothing about. Not everything is apparent.
A surgically created opening in the abdomen in which a piece of the colon (large intestine) is brought outside the abdominal wall to create a stoma through which digested food passes into an external pouching system.
For people with inflammatory bowel disease IBD , however, talk of sex and sexuality can be derailed by disease, medication, and surgery, all of which might have an impact on sexual function. Also, the symptoms of IBD can affect body image, deterring people from pursuing a sexual relationship. Growing Up Children learn about sexuality as their bodies change.
For kids with IBD, this process may be delayed. Parents can make the difference during these unsteady times. Usually, however, most patients with IBD are kept off steroids for prolonged periods of time, or are kept on as low a dose as possible. Sulfasalazine is associated with a dose-related reduction in sperm count, but not in sexual performance. Also, anal intercourse may aggravate a fissure [tear] or other disease in the anal area. I know my husband loves me, because we went so long without having sex.
Dysfunction from surgery should be very, very uncommon if the surgery is performed correctly. It does occur on rare occasions when surgery is particularly difficult because of severe disease that has destroyed a lot of tissue.
Famous People with Ostomies
I know it was for me. He told me that it would not change anything majorly, but it would be an adjustment, especially after getting the rectum removed. The rectum is right up against the vaginal canal and provides support, so no longer having it made things feel different. Not bad different, just… different.
Jan 24, · Tess, One of the most frustrating things about this site is how folks say they have an ostomy, but often not what kind. A colostomy utilizes the colon before the exit which allows the body to remove fluids from the stool and leave in mostly a putty state.
David Spector talk Irrigation[ edit ] I undid an addition to the irrigation section because it had a broken reference and it seems to be a very detailed description of the irrigation procedure. I propose that the irrigation sections be combined into a single smallier section describing irrigation in a true encyclopedia format, i. Are you an ostomate? The reason I added the longer explanation to irrigation that was already there is that it did not give the right explanation for and how to irrigate.
Many ostomates take it into their heads that once having heard about irrigation, it is a simple procedure, which it is absolutely not.
Dating Advice When You Have an Ostomy Bag
This is Jennie’s story, re-posted with her permission Dating with Baggage By Jennie David I was sitting at the dining room table, across from a home health nurse, and my parents were talking in the kitchen down the hall. I was about 1. For me — and many of us with ostomies — the pouch is merely a physical reminder of a disease that affected me long before my surgery and will continue to do so. If dating and falling in love were like it is in the movies, all we would need would be a good-looking person, a well-written script, and a perfectly chosen song.
But since we live in the real world, things are not so direct.
Sep 14, · Hi Grace and WhoaI have had a urostomy (radiation damage to bladder) since , I have frequent infections and stones. My Urologist says that the infections can be a result of the urine backing up into the kidney (reflux) as Whoa explained.
Figuring out what to wear was hard enough without an ostomy. Then I got an ostomy and as I was healing, my belly was sore and tender, my clothes were uncomfortable, I was scared to wear anything tight for fear that it would burst my pouch, and I was self-conscious that my pouch was totally noticeable even when it was empty…sound familiar? As I continued healing, my belly became less sore and clothes became more comfortable. There are a few key items that are perfect for feeling comfortable and cute in the winter and you probably already have at least a couple of them in your closet.
Patterned tops make it hard to see where the bulge is. High-waisted pants are great for keeping your bag snug to your body which also helps keep it slim. You can be extra creative with your pants and get patterned pants or skirts if you plan to wear a shorter shirt.
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The happy-go-lucky guy I knew, had become grumpy, tired, lazy and totally void of motivation. It took a year for him to see a GP and in that year, I had failed to see he was suffering and with something I had had for many years. He had subconsciously avoided acknowledging and therefore accepting, what he has seen many times with myself and his mother. I realised that he was internalising it all because he believed depression to require a reason and he wanted to avoid hurting me.
However hiding it only hurt us both more and I felt that I had failed him. He felt it would seem trivial in comparison and that he had no reason to be depressed.
On July 14th , I celebrated a pretty big year anniversary. It wasn’t an amazing career milestone or hitting my Tin wedding anniversary. Nope, it’s 10 years of living with a colostomy bag.
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